Resources

• 2-1-1 Idaho Careline is a free, statewide community information and referral service, and is a program of the Idaho Department of Health and Welfare. Our comprehensive database includes programs that offer free or low-cost health and human services or social services. Simply dial 2-1-1 or 800-926-2588 or text 898211 to be connected to a 2-1-1 community resource specialist Monday – Friday, 8 a.m. – 6 p.m. MST. Search online for available resources https://211- idaho.communityos.org/
• Caregiver Action Network is a family caregiver organization working to improve the quality of life for Americans who care for loved ones with chronic conditions, disabilities, diseases, and old age. CAN is a nonprofit organization providing education, peer support, and resources to family caregivers https:// www.caregiveraction.org/
• Family Caregiver Navigator allows for caregivers to connect with a navigator that will identify their biggest stress factors and build a care plan based on the priorities of the caregiver https://caregivernavigator.org/
• Idaho Caregiver Alliance is a coalition of individuals and organizations that are focused on expanding opportunities for respite as well as other caregiver supports across the lifespan of loved ones with disabilities https:// idahocaregiveralliance.com/
• Powerful Tools for Caregivers provides classes that give caregivers the skills to take care of themselves while caring for someone else https:// www.powerfultoolsforcaregivers.org/
• LEARN (Lifelong Education & Aging Resource Network) Idaho is a non-profit organization that was formed to provide free education for the caregiver community by the caregiver community that cover areas of health, wealth, lifestyle, caregiving, technology, and elder abuse awareness https:// learnidaho.org/
• Idaho Parents Unlimited (IPUL) offers training, webinars, and resources for parents of children with disabilities and special needs. They provide individual assistance to families, advocate for Idaho families impacted by disability, listen, and provide support https://ipulidaho.org/
• Power Independent Living is a campaign that is devoted to ending Idaho’s direct care worker crisis. They advocate for more support of direct care as a sustainable career choice. They also have resources to find direct care, caregiver training, and family caregiver support https://www.powerindependentliving.org/
• Rays for Rare supports medically fragile children and their families. They offer advocacy, support, education, and services throughout their difficult time https:// www.raysforrare.org/
• Living Independence Network Corporation (LINC) provides independent living services for people with disabilities. They provide the tools, resources, and supports for integrating people with disabilities fully into their communities to promote equal opportunities, self-determination, and respect https:// www.lincidaho.org/
• Center for Parent Information and Resources provides access to information and products that are created for the network of Parent Centers serving families of children with disabilities https://www.parentcenterhub.org/
• Fyidaho is a program that is committed to improving, preserving, and restoring the mental health of youth and families (formerly known as Idaho Federation of Families for Children’s Mental Health) https://www.fyidaho.org/

• Wildflower Intuitive Center combines clinical therapy and various holistic methods of relaxation, for parents moving through the stress of caring for a medically fragile child and offers multiple services including caregiver group support and individual therapy https://www.wildflowerintuitivecenter.com/
• 2-1-1 Idaho Careline is a free, statewide community information and referral service, and is a program of the Idaho Department of Health and Welfare. Our comprehensive database includes programs that offer free or low-cost health and human services or social services. Simply dial 2-1-1 or 800-926-2588 or text 898211 to be connected to a 2-1-1 community resource specialist Monday – Friday, 8 a.m. – 6 p.m. MST. Search online for available resources https://211- idaho.communityos.org/
• Brain Injury Alliance of Idaho provides services such as advocacy, education, and support groups for individuals who have had a brain injury and their families https://biaid.org/services/support-groups/
• Caregiver Action Network is a family caregiver organization working to improve the quality of life for Americans who care for loved ones with chronic conditions, disabilities, diseases, and old age. CAN is a nonprofit organization providing education, peer support, and resources to family caregivers https:// www.caregiveraction.org/
• Carrying To Term is an organization dedicated to providing non-directive information on pregnancy continuation for prenatal diagnoses of life-limiting conditions. We equip healthcare providers with knowledge and tools to communicate carrying to term as an option to their patients and empower women and families to make fully informed choices as they navigate this deeply personal journey https://carryingtoterm.org/
• Courageous Hearts of Idaho is the only pediatric heart disease support group in Idaho. We’re open to parents of children with heart disease, adults with congenital heart disease, extended families, caregivers, nurses—anyone who loves someone with a courageous heart https://www.stlukesonline.org/communities-and-locations/support-groups/courageous-hearts-of-idaho-st-lukes-childrens
• Disability Action Center Northwest (DAC-NW) helps individuals and families struggling with disability related issues and problems. You can choose one-on-one peer counseling or, for some issues, mentoring in a comfortable group setting. Increase your interpersonal skills and DAC can help provide guidance while you retain control and responsibility for the process https://dacnw.org/services/peer-advocacy-counseling/
• Fyidaho is a program that is committed to improving, preserving, and restoring the mental health of youth and families (formerly known as Idaho Federation of Families for Children’s Mental Health) https://www.fyidaho.org/
• Idaho Caregivers Unite is an online Facebook group of caregivers who strive to support each other in the struggles that can come with caring for a loved one https://www.facebook.com/groups/368322090449952
• National Family Voices is an organization made up of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. They connect a network of family organizations across the United States that provide support to families of CYSHCN https://familyvoices.org/
• Rays for Rare supports for medically fragile children through advocacy, support, and education for the child and their care provider. Supports available include family events, housekeeping, meal service, support groups and more https:// www.raysforrare.org/
• Saint Alphonsus Perinatal/Pediatric Advanced Care Team (PACT) is a team of specialists from various backgrounds who are dedicated in helping families navigate unexpected birth outcomes or caring for medically fragile children. They aim to address the physical, emotional, psychosocial, and spiritual needs of families https://www.saintalphonsus.org/services/pact
• Sibling Support Project is a national program that is dedicated to the life-long and ever-changing concerns of millions of siblings of people with special developmental, health, and mental health needs. Services include lively events for school-age siblings, online communities, publications, and workshops, and trainings https://siblingsupport.org/major-initiatives/
• Tiny Superheroes is a program that provides custom superhero capes to children with disabilities or medical conditions. The program’s goal is to help children feel strong and proud, and to change how people view disability. They also have an online community that serves as a place for families to come together to share their journeys, challenges, and triumphs https:// tinysuperheroes.com/

• ABLE Program allows for qualified individuals with disabilities to save up money in a savings account while not impacting their SSI and/or SSDI benefits. Individuals that qualify include individuals with significant disabilities with an age of onset before turning 26 years of age
  • Guide to the ABLE Program: https://www.lincidaho.org/able-accounts
  • Programs open to Idaho Residents: https://silc.idaho.gov/able-accounts/
  • Choose a Program: https://www.ablenrc.org/select-a-state-program/
• Find Help Idaho is a tool that was created to help families locate financial assistance, food pantries, medical care, and other free or reduced-cost help https://www.findhelpidaho.org/
• Idaho Empowering Parents Grant Program provides eligible families with grant funds for use towards eligible education services and devices to help students recover from learning loss https://empoweringparents.idaho.gov/
• Idaho Smiles – MCNADental is the Medicaid dental plan for the entire state of Idaho. https://www.mcnaid.net/members
• Medicaid is a federal program that provides health coverage for children who meet certain eligibility criteria.
  • Apply for Medicaid at https://idalink.idaho.gov/
    • You can also use this site to complete re-evaluation, view benefits, report a change, apply for food assistance, cash assistance, or child care assistance
• Idaho Medicaid Health Plan Booklet is a guide that explains what Idaho Medicaid is, how to apply, and other important information
  English | Spanish
• Katie Beckett Program and the Developmental Disabilities Budget (“Redesign) is a pathway to Medicaid for children under the age of 19 living at home with long-term disabilities or complex medical needs, who may be eligible for Medicaid services even if their family income is above Medicaid federal poverty guidelines. Could your child benefit from Medicaid coverage, but your household has an income level that disqualifies you? Your child may be eligible for Katie Beckett based on their diagnosis.
  • Submit a regular Medicaid application even if you don’t qualify. Do this on paper, and write KATIE BECKETT, across the top. The Department of Health and Welfare will respond by sending you a Developmental Disabilities Application.
  • Gather copies of all of your child’s diagnostic records (physical health, developmental health and mental health), complete the Developmental Disabilities Application and submit everything together. This step moves faster if you scan and email the information, rather than mailing items
  • Next apply for the Developmental Disabilities budget aka “Redesign Budget” through the Department of Health and Welfare. This will provide $14,900 to $30,000 or higher, which can be spent on adaptive equipment, nontraditional therapies (such as music therapy, aqua therapy or equine therapy), and other items not covered by Medicaid/Katie Becket.
  • More information on Katie Beckett program: https://healthandwelfare.idaho.gov/services-programs/medicaid-health/about-katie-beckett-program
  • Apply for Katie Beckett: https://healthandwelfare.idaho.gov/services-programs/medicaid-health/apply-katie-beckett
  • Manage Katie Beckett Medicaid: https://healthandwelfare.idaho.gov/services-programs/medicaid-health/manage-my-katie-beckett-medicaid
• Patient Assistance Fund through the Jaden DeLuca Foundation is designed to assist families with children that have been diagnosed with Congenital Heart Defects (CHD). Financial assistance may include, but is not limited to travel assistance related to CHD medical care, medical bills related to CHD and not covered by insurance, and CHD specialized equipment not covered by insurance https://jaydendelucafoundation.org/patient-assistance-fund/
• Self Rescue Manual – Ada County is a guide to all community resources and supports in Ada County including clothing, counseling, education, medical, employment, financial assistance, food pantries, crisis hotlines, housing assistance, legal assistance, support groups, tax resources, and transportation
  English | Spanish
• Self Rescue Manual – Canyon County is a guide to all community resources and supports in Canyon County including clothing, counseling, education, medical, employment, financial assistance, food pantries, crisis hotlines, housing assistance, legal assistance, support groups, tax resources, and transportation https://www.idadoptresources.org/wp-content/uploads/2021/06/Canyon-County-Self-Rescue-Manual-08.2020.pdf

• Beds by George is a company that builds beautiful safety beds for special needs children, youth, adults, as well as handicapped, disabled and medically fragile individuals who need extra fall and entrapment protection while in bed. https://bedsbygeorge.com/
• Disability Action Center (DAC) Durable Medical Exchange is a program that helps people with temporary or permanent disabilities secure durable medical equipment free of charge. DAC helps people find manual wheel chairs, power chairs/scooters, bath benches/seats, commodes, lift recliners, tablets or laptop computers, and smart phones/iPods, ramps, support bars, transfer boards, canes, crutches, and walkers https://dacnw.org/services/medical-equipment-exchange/
• Hands of Hope Northwest restores hope, health, and mobility by collecting donated medical equipment and supplies and redistributing them to people in need locally and globally. Based in Nampa, Idaho, they help hundreds of people get back on their feet every year after surgery or an injury, and give mobility and dignity to the elderly and disabled who need help to move around their homes. https://handsofhopenw.org/
• Huckleberry Hiking Strollers are tandem hiking carts that were created to make all hiking trails more accessible https://huckleberryhiking.com/
• Idaho Assistive Technology Project (IATP) The Idaho Assistive Technology Project provides support for individuals with disabilities and older persons in their personal selection of assistive technology as they live, work, and play in their communities. Services include lending devices for short-term trial or use, information & assistance about assistive technology/devices, consultations, training and technical assistance, device demonstrations, statewide assistive technology exchange, and financial loans and referrals. https://idahoat.org/
• Idaho Talking Book Service (TBS) is a free, convenient audiobook library service for Idahoans who are unable to read standard print due to low vision, blindness, or a physical, perceptual, or reading disability. The service is completely free for users, who receive titles by downloading them and/or having the materials (on cartridges) mailed directly to and from their residence at no cost https://idahotalkingbooks.org/
• Lateral Rotation Mattresses give comfort to patients who are bed-bound for extended periods of time by automatically turning the patient side to side at selected intervals https://www.bluechipmedical.com/the-difference-between-a-lateral-rotation-mattress-and-an-alternating-pressure-mattress/
• Numotion offers extensive mobility solutions, including a series of wheelchairs that can be configured to meet a patient’s individual needs, comfort, and health https://www.numotion.com/
• Obi (Adaptive Eating Device) is a revolutionary adaptive eating device that allows users to be in control of what they eat and when using customizable accessibility switches https://meetobi.com/
• Open Sesame Door Systems is an automatic door opening/closing system that can be controlled using various input methods including touch, voice, eye gaze, head tracking, and sip and puff that allows individuals with disabilities to open doors without assistance https://accessibilityservices.com/open-sesame/
• Norco Medical offers an extensive line of home medical supplies to support a wide variety of needs from oxygen and sleep therapy, to mobility, breast pumps plus much more. They provide patients with the equipment necessary to maintain health, independence, comfort, safety and freedom. https://www.norcomedical.com/
• Paws 4 Abilities is a non-profit organization that breeds, raises, trains, and places service dogs with children and veterans who have disabilities https://www.4pawsforability.org/
• Squatty Potty helps to promote a more natural squatting position while using the toilet, which can improve bowel movements by straightening the rectum and making it easier to fully empty the bowels. This posture also reduces strain during bowel movements, potentially easing discomfort and preventing issues like hemorrhoids. https://www.squattypotty.com/
• Wheelchairs 4 Kids is dedicated to improving the lives of children with physical disabilities by providing wheelchairs, home and vehicle modifications, as well as other assistive equipment at no charge to the families through their Let’s Roll Program https://wheelchairs4kids.org/
• Wheel to Walk Foundation is a non-profit organization that helps children with disabilities, 20 years and younger, obtain medical equipment or services not provided by insurance. https://wheeltowalk.com/
• Whitmyer creates premium, technologically advanced, fully adjustable wheelchair head support systems that are known for their exceptional comfort and fit https://www.sunrisemedical.com/seating-positioning/whitmyer/head-positioning

• All Abilities Carnival is hosted by My Places Community Events in Boise, Idaho. It is an annual event that has games, prizes, bounce houses, pictures, food trucks, social spaces, stage performances, vendors, exhibitors, and information booths for disability support and advocacy for all ages and abilities https://myplacesce.org/myplaces-events/
• Bluepath is website that allows for people with disabilities to determine the accessibility of local businesses. Bluepath also connects local consumers and their families with local businesses who want to work together towards a more accessible world by providing tools needed to identify barriers to accessing a business and their goods and services https://blue-path.org/
• Dream Factory is the largest all-volunteer driven children’s wish-granting organization that does not limit its mission to children who have life-threatening illness. The organization believes children with chronic illnesses and disorders also suffer from substantial emotional and physical pain https://www.dreamfactoryinc.org/
• Fiona’s Hope is a nonprofit organization formed to address the comfort needs of families of hospitalized children during prolonged or unexpected hospital stays. Fiona’s Hope does this by spreading hope through the little comforts of home with Fiona’s Hope Totes, remembering heaven’s newest angels through Fiona’s Hope Memorials, and providing support by connecting with families through personal experience http://www.fionashope.org/
• Living Independence Network Corporation (LINC) provides independent living services for people with disabilities. They provide the tools, resources, and supports for integrating people with disabilities fully into their communities to promote equal opportunities, self-determination, and respect https://www.lincidaho.org/
• My Places Community Events is an organization based in Idaho that provides safe, adaptive, and inclusive events for people of all ages and abilities https://myplacesce.org/
• Night To Shine is a complimentary event for people with special needs hosted by local churches around the world. The event is open to anyone living with disabilities, ages 14 and older. Each event is unique to its location, but some cornerstone activities included across all of them are a red carpet entrance complete with a warm welcome from a friendly crowd and paparazzi, hair and makeup stations, shoeshines, limousine rides, karaoke, gifts, a catered dinner, a Sensory Room, a Respite Room for parents and caregivers, dancing, and a crowning ceremony where every guest is honored as a King or a Queen – the way God sees them each and every day. https://timtebowfoundation.org/night-to-shine/
• Rays for Rare supports medically fragile children and their families. They offer advocacy, support, education, and services throughout their difficult time https://www.raysforrare.org/
• Self Rescue Manual – Ada County is a guide to all community resources and supports in Ada County including clothing, counseling, education, medical, employment, financial assistance, food pantries, crisis hotlines, housing assistance, legal assistance, support groups, tax resources, and transportation English
• Self Rescue Manual – Canyon County is a guide to all community resources and supports in Canyon County including clothing, counseling, education, medical, employment, financial assistance, food pantries, crisis hotlines, housing assistance, legal assistance, support groups, tax resources, and transportation
  English | Spanish
• Tiny Superheroes is a program that provides custom superhero capes to children with disabilities or medical conditions. The program’s goal is to help children feel strong and proud, and to change how people view disability. They also have an online community that serves as a place for families to come together to share their journeys, challenges, and triumphs https://tinysuperheroes.com/

• Advancing Adventures in Communicating (AAC) Camp is a day camp specializing in increasing communication abilities and socialization skills in augmentative communication users through speech generating devices. Camp activities this year will include arts and crafts, swimming, special events, music, computer literacy, and drama! Campers must own a speech generating device and provide a video of themselves using their device before acceptance into AAC camp. Families are welcome during camp to observe and learn with their campers. Onsite dormitory living is available https://idahoaaccamp.wixsite.com/isu-aac-camp
• All Abilities Carnival is hosted by My Places Community Events in Boise, Idaho. It is an annual event that has games, prizes, bounce houses, pictures, food trucks, social spaces, stage performances, vendors, exhibitors, and information booths for disability support and advocacy for all ages and abilities https://myplacesce.org/myplaces-events/
• Awesome! Adaptive Wilderness Sports of McCall is a year-round adaptive outdoor recreation program that offers a full range of adaptive sports instruction for individuals with a disability of all ages and abilities. Adaptive activities include skiing, snowboarding, snowshoeing, kayaking, canoeing, cycling, and day and overnight activity camps https://sites.google.com/awesomemccall.org/home/home?authuser=0
• Boise Adaptive Snowsport Education (BASE) facilitates winter sports opportunities for individuals with disabilities through professional ski and snowboard education in a safe environment which increases physical, social, and functional skills https://www.baseidaho.net/
• Boise Bombers Wheelchair Rugby are a competitive wheelchair rugby team playing in the USWRA since 2012 http://www.boisebombersquadrugby.com/
• Camp Purple Pines is a unique, positive FREE camp experience for Idaho kids ages 10-16 living with epilepsy, offering the chance to build friendships, gain confidence, and have fun in a safe environment. Enjoy activities like archery, biking, crafts, a glow party, workshops, and more! https://www.epilepsyidaho.org/epilepsy-summer-camp/
• Camp Via West provides exceptional programming and a wide variety of activities for campers with disabilities and differing needs. Camp Via West provides exceptional programming and a wide variety of activities on a stunning 13.5-acre campus in the Cupertino foothills, located less than 5 miles off highway 280. Our programs are supervised by attentive, energetic, and well-trained staff who help campers stretch their imaginations, learn new skills, enjoy wonderful outdoor experiences, and help make lifetime memories! https://campviawest.org/
• C.A.S.T. (Catch A Special Thrill) for Kids Foundation enables children with special needs and their caretakers to come together with community volunteers for a fun day of fishing https://castforkids.org/
• Challenged Athletes Foundation (CAF) Idaho provides opportunities for people with permanent physical disabilities to get active and connect with an inclusive community. Through grants for adaptive sports equipment, coaching, and competition expenses as well as sports programming, CAF-Idaho is unleashing athletic potential and giving people with physical disabilities a way to get back into the game of life through sport https://www.challengedathletes.org/region/idaho/
• City of Boise Adaptive Recreation Program provides a wide range of recreational, social, and educational programs for youth and adults with disabilities. Individuals with disabilities can choose to participate with one of our adaptive recreation programs which are specifically designed for someone with a disability or utilize inclusion services in which modifications may be provided so that an individual with a disability can fully participate in any of Boise Parks and Recreation’s programs https://www.cityofboise.org/departments/parks-and-recreation/adaptive-recreation/
• Courageous Kids Climbing is a group of rock climbers based in McCall, Idaho that donate their time to teach children with special needs how to climb https://www.facebook.com/CourageousKidsClimbing/
• Dream Factory is the largest all-volunteer driven children’s wish-granting organization that does not limit its mission to children who have life-threatening illness. The organization believes children with chronic illnesses and disorders also suffer from substantial emotional and physical pain https://www.dreamfactoryinc.org/
• Fearless Outdoorsman is a program that provides hunting and fishing trips for children afflicted with life-threatening illnesses as well as veterans that have been affected by medical or emotional trauma https://www.fearlessoutdoorsman.com/
• Game Changers Idaho is based in Boise, Idaho and offers multiple sporting opportunities for children with and without disabilities in the grades of K-12 https://www.gamechangersidaho.org/
• Higher Ground Sun Valley is based in Sun Valley, Idaho and combines outdoor recreation activities with therapeutic process to help all participants confront current struggles and develop skills to find success in daily life. Programs include adaptive sports such as skiing and cycling https://highergroundusa.org/
• Idaho Adaptive Sports aims to build character, foster resilience, and empower players to live life without limitations through sports and recreation. Programs include wheelchair basketball, sled hockey, and wheelchair tennis https://idahoadaptivesports.org/
• Idaho Challenger Little League is an adaptive baseball program for individuals with physical and intellectual challenges accommodating players ages 4 to 18; or up to age 22 if still enrolled in school. The Senior League challenger Division accommodates players ages 15 and above (no maximum age) https://www.idahochallengerlittleleague.com/
• Idaho Disabled Archery was created to bring people with disabilities together so that they can help and encourage each other through archery https://www.facebook.com/IDArchery/
• Idaho Sled Hockey Association educates, trains, motivates, and encourages individuals who have physical disabilities to participate in the sport of ice hockey in an environment that is adapted to the level of ability of the participating athletes https://www.idahosledhockeyassociation.org/
• Idaho Wheelchair Tennis is dedicated to the promotion of tennis among disabled adults and children. They strive to introduce competitive wheelchair tennis to local athletes, and to offer all members (with varying degrees of ability) opportunities to connect with other players, to challenge themselves, and to participate in our community in positive ways https://playtennis.usta.com/idaho-wheelchair-tennis-association0
• Idaho Youth Adaptive Sports Camp is offered to youth and teens age 6-19 who’s primary disability is a physical disability that limits mobility. Young athletes with physical disabilities who use a wheelchair, AFO braces, walker or crutches are welcome to attend. During the camp we will play and learn a variety of adaptive sports and this is the perfect time for youth athletes with physical disabilities who use a wheelchair or could use a wheelchair to participate in sports! During the four days, we will play wheelchair basketball, wheelchair tennis, softball and try sports out such as handcycling, canoeing, fishing, and more! https://www.cityofboise.org/departments/parks-and-recreation/adaptive-recreation/adventure-seeker-program/adaptivesportscamp/
• Joni and Friends Family Retreats focus on families navigating the challenges of disability. They strive to create a rich, Christ-centered environment at each Family Retreat that is safe and accepting for each member of the family https://joniandfriends.org/family-retreat/
• Merry Heart Children’s Camp provides a summer camp experience where youth with heart conditions from Oregon, Washington and Idah oare encouraged to make new friends, share experiences and participate in activities and sports to the best of their abilities. https://www.merryheartchildrenscamp.org/
• Morgan’s Wonderland is an ultra-accessible theme park that has been designed with individuals with special needs in mind located in San Antonio, Texas. Morgan’s Wonderland offers 25 attractions, sprawled across a 25-acre oasis of inclusion. From a wheelchair-accessible Ferris wheel to catch-and-release fishing, there is something for everyone to enjoy! https://morganswonderland.org/
• My Places Community Events is an organization based in Idaho that provides safe, adaptive, and inclusive events for people of all ages and abilities https://myplacesce.org/myplaces-events/
• National Federation of the Blind Braille Enrichment for Literacy and Learning (NFB BELL) Academy is a nationwide summer program dedicated to empowering blind and low-vision children, helping them grow into confident, independent individuals who can live the lives they envision. The NFB of Idaho is thrilled to host a program and invites your child to enhance their Braille and nonvisual skills alongside other blind youth and inspiring blind role models. https://nfb.org/programs-services/education/nfb-bell-academy/idaho
• Northwest Association for Blind Athletes is dedicated to improving the quality of life for children, youth, and adults through participation in sports and physical activity in communities across Washington, Oregon, Idaho, and Montana https://nwaba.org/idaho/
• People Need People is an Idaho organization that aims to make the outdoors more accessible for people with disabilities by hosting adaptive hikes for wheelchair users

• Glass Child Syndrome: This article explains glass child syndrome which is what an individual can experience when they have a sibling with special needs. The individual may get less attention from their parents and may feel overlooked. This article explains the phenomenon, symptoms, and solutions https://health.clevelandclinic.org/glass-child
• Rays for Rare supports medically fragile children and their families. They offer fun sibling activities, advocacy, support, education, and services https://www.raysforrare.org/
• Sibling Leadership Network provides siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families https://siblingleadership.org/
• Sibling Support Project is a national program that is dedicated to the life-long and ever-changing concerns of millions of siblings of people with special developmental, health, and mental health needs. Services include lively events for school-age siblings, online communities, publications, and workshops, and trainings https://siblingsupport.org/major-initiatives/
• Siblings with a Mission serves and supports siblings and families of individuals with complex health conditions and developmental disabilities http://www.siblingswithamission.org/
• SibTeen is Facebook group where teenage sibs of people with disabilities can connect with others who get it. It’s a fun and thoughtful group where members share unique concerns, joys, frustrations, and information with others who truly understand! https://www.facebook.com/groups/SibTeen/
• The Center for Siblings of People with Disabilities helps siblings of people with disabilities feel seen, supported, and empowered — with a focus on providing early intervention for young siblings. Our work focuses on 1) providing multimedia resources and education for parents, relatives, service providers, and siblings themselves, 2) spreading awareness of sibling issues throughout the general population, and 3) providing programming to support young siblings, particularly through a lens of artistic expression
• Video “Brothers and Sisters of People with Disabilities: Unique Concerns, Unique Opportunities” by the UC Davis MIND Institute View Here

• Act Early Idaho helps families and professionals monitor children’s development and identify concerns early. Monitoring children’s development is the first and most important step in identifying children who may need additional supports. https://idahocdhd.org/aei
• Extended Resources for Younger Guests with Disabilities (Eagle Public Library) is a variety of toys and kits available to check out for children with disabilities https://eaglepubliclibrary.org/special-needs-2/
• Idaho Empowering Parents Grant Program provides eligible families with grant funds for use towards eligible education services and devices to help students recover from learning loss https://empoweringparents.idaho.gov/
• Idaho Partners in Policymaking is an innovative leadership development program for adults with developmental disabilities and parents of children with disabilities. Partners receive information, training, resources, and skill-building so they may have the best possible life experiences for themselves and their children. The program was developed specifically to teach people with disabilities and families of young children with disabilities to work on long-term change, become active partners with policymakers, and understand possibilities and how to create them https://icdd.idaho.gov/partners-in-policymaking/#:~:text=What%2520Is%2520Idaho%2520Partners%2520in,parents%2520of%2520children%2520with%2520disabilities
• Idaho School for the Deaf and Blind is a state-operated public school in Gooding, Idaho. It is part of the agency Idaho Educational Services for the Deaf and the Blind. It serves all qualifying residents of Idaho from birth to age 21 https://www.iesdb.org/
• Idaho Talking Book Service (TBS) is a free, convenient audiobook library service for Idahoans who are unable to read standard print due to low vision, blindness, or a physical, perceptual, or reading disability. The service is completely free for users, who receive titles by downloading them and/or having the materials (on cartridges) mailed directly to and from their residence at no cost https://idahotalkingbooks.org/
• Idaho Training Clearinghouse (ITC) is a site that connects all Idaho educators and parents with hundreds of special education resources https://idahotc.com/
• Libraries Linking Idaho (LiLI) gives Idaho residents free access to 150 prime academic research and learning databases that include thousands of professional journals, reference materials, newspapers, and magazines https://lili.org/about/
• PACER Center offers more than 30 programs for parents, students, professionals, and other parent organizations that address issues ranging from early childhood to assisting youth in making the transition from high school to work, parents on PACER’s staff share their experiences and knowledge with others so that all children with disabilities may have a better future https://www.pacer.org/
• Wrightslaw Idaho Yellow Pages For Kids helps caregivers find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocated, and attorneys for children with disabilities https://www.yellowpagesforkids.com/help/id.htm#google_vignette

• Idaho Parents Unlimited (IPUL) offers information to help parents understand the Individualized Education Program (IEP) process https://ipulidaho.org/education/specialeducation/iep/
• Idaho Training Clearinghouse has created resources and videos to help parents navigate the special education and IEP process https://idahotc.com/Parents/page14423/1/size14423/6
  • Special Education Roadmap https://idahotc.com/Resources/File/RFFID/15609
  • What to Expect: IEP Meeting Video https://idahotc.com/Resources/View/RID/193
  • What to Expect: IEP Services Video https://idahotc.com/Resources/View/RID/760
• Idaho Department of Education has resources to provide parents and guardians with information on various special education topics and organizations in Idaho focused on providing tools and support to help families navigate the world of Special Education https://www.sde.idaho.gov/sped/parents/
• JenEd offers transformative education technology, family advocacy, and educator development that strengthens how schools support students. Their InnovatEd Student Support System helps streamlines MTSS, SST, 504, and IEP systems into one collaborative platform—ensuring coordinated, compliant, and consistent student support. https://www.jenedofficial.com/

• American Cleft Palate – Craniofacial Association is an organization of healthcare professionals who treat children with cleft lip and palate. Resources include fact sheets about treatment, emotions and social issues. Available in English and Spanish. https://acpacares.org/
• Brain Injury Association of Idaho promotes awareness, understanding and prevention of brain injury through support, advocacy and education based on the expressed needs of persons affected by brain injury https://biaid.org/
• Cerebral Palsy Toolkit is a guide created to help families affected by cerebral palsy find support, cope with changes, and explore ways to set their child on a path to a bright future https://www.levinperconti.com/birth-injury/cerebral-palsy/guide-toolkit/
• CHARGE Syndrome Foundation works to improve the lives of people with CHARGE syndrome locally, nationally, and internationally through outreach, education, and research. https://www.chargesyndrome.org/
• Conquering CHD has a mission to “Conquer Congenital Heart Disease” through collaboration with patients, families, providers, and partner organizations, improving quality and outcomes, through education, support, research, and awareness. https://www.conqueringchd.org/
• Cure SMA leads the way to a world where everyone impacted by spinal muscular atrophy (SMA) is empowered to lead independent, successful, and fulfilling lives. They strive to create a community where every individual is heard and feels welcomed. Cure SMA provides practical support programs for our community and advocates for their needs. https://www.curesma.org/
• Cystic Fibrosis Center of Idaho brings together a variety of specialists with expertise in the medical and emotional issues people with cystic fibrosis face. Our goals are to optimize the health of our patients and families through top-quality healthcare and education, and improve the quality and length of life for children and adults living with cystic fibrosis (CF). https://stlukesonline.org/en/get-care/locations/clinics/st-lukes-cystic-fibrosis-center-of-idaho-boise/
• Cystic Fibrosis Foundation help people with cystic fibrosis and their families get the tools and support they need to lead healthy lives today. The incredible strides we’re making in research and drug development mean nothing if people with CF don’t have access to the care and therapies they need. https://www.cff.org/chapters/utah-and-idaho-chapter
• Eastern Idaho Down Syndrome Family Connect builds a positive connection between individuals with Down syndrome, their families, and Eastern Idaho. They do this by providing education, advocacy, support, and resources to help facilitate inclusion within the local community. https://www.easternidahodownsyndrome.org/
• Epilepsy Foundation Idaho has a mission to improve the lives of people affected by epilepsy through education, advocacy, research, and connection; and a vision that the 17,000 people in Idaho who are living with epilepsy or seizure-related conditions do not face their journeys alone. https://www.epilepsyidaho.org/
• Friedreich’s Ataxia Research Alliance (FARA) focuses on resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases. https://www.curefa.org/
• FSHD (Facioscapulohumeral Muscular Dystrophy) Society – Idaho is part of the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone. https://www.fshdsociety.org/local-chapter/idaho-chapter/
• Idaho Pediatric Cancer Coalition offers resources for financial, emotional, and household support such as comfort items, cleaning, childcare costs, and anything else to alleviate the stress of dealing with a pediatric cancer diagnosis. https://www.idahopediatriccancercoalition.org/
• Idaho Project for Children and Youth with Deaf-Blindness (ICYDB) works to enhance the educational services provided to children and youth (birth through 21) with combined vision and hearing losses. They provide statewide technical assistance and training to support parents, service providers and agencies in meeting the educational needs of children and youth who are deafblind. https://idahocdhd.org/cydb
• Idaho Spina Bifida supports and educates families and individuals in Idaho who are affected by Spina Bifida http://www.idahospinabifida.org/
• Little People of America (LPA) is a nonprofit organization that provides support and information to people of short stature and their families. https://www.lpaonline.org/district-11-ak-id-mt-or-wa
• Muscular Dystrophy Association (MDA)-Idaho is part of the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. MDA’s mission is to empower the people we serve to live longer, more independent lives. https://www.mda.org/
• National Bleeding Disorders Foundation – Idaho provides education, support, awareness, and advocacy for the bleeding disorder community https://id.bleeding.org/
• National Federation of the Blind coordinatesc many programs, services, and resources to defend the rights of blind Americans, provide information and support to blind children and adults, and build a community that creates a future full of opportunities. https://nfb.org/
• National Kidney Foundation of Utah and Idaho aims to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. https://www.kidneyut.org/
• Treasure Valley Down Syndrome Association seeks to provide reassurance to new parents about tomorrow, to help celebrate today, and to teach and inspire – all while learning more about ourselves. We also work to create awareness around Down syndrome, so the whole community will accept and recognize the greatness we see in our loved ones. https://www.idahodownsyndrome.org/

• Comfort Ability Program (Chronic Pain Adolescent Group) St. Luke’s is a brief psychological intervention for chronic pain education and symptom management for children with chronic pain and their parents https://idahoaap.org/pdfs/CAP-Flyer.pdf
• Lullaby Waters is an outpatient occupational therapy clinic that utilizes aquatic therapy for the promotion of overall well-being. Their pools are warm and inviting and the lighting system allows for decreased visual stimuli. They feature a baby room that specializes in care for infant development – a cozy haven where parents can settle in and focus on their infant’s needs. Their therapists are nurturing and kind, ready to meet the needs of you and your child. https://www.lullabywaters.com/
• Now I Can is an intensive physical therapy that stands apart from other physical therapy centers in many ways, including the use of the Intensive Model of Therapy (IMOT). Our therapists treat patients 4 hours a day, five days a week for intensive sessions, Now I Can physical therapists design a tailored program for each patient to help them reach their greatest level of independence. Over the course of a three-week intensive session, children reach their goals and gain developmental skills as therapists have the needed time to use repetition and all the tools at their disposal to help kids meet their potential. It’s very common for patients to make more progress in three weeks of intensive therapy than they do in 12 months of traditional therapy! https://www.nowican.org/
• Saint Alphonsus Perinatal/Pediatric Advanced Care Team (PACT) is a team of specialists from various backgrounds who are dedicated in helping families navigate unexpected birth outcomes or caring for medically fragile children. They aim to address the physical, emotional, psychosocial, and spiritual needs of families https://www.saintalphonsus.org/services/family-center/pact-perinatalpediatric-advanced-care-team
• Wrightslaw Idaho Yellow Pages For Kids helps caregivers find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocated, and attorneys for children with disabilities https://www.yellowpagesforkids.com/help/id.htm#google_vignette

• Access Paratransit by Valley Regional Transit is a transportation service provided for people with disabilities who can’t use the fixed-route bus system in the Treasure Valley area https://www.valleyregionaltransit.org/accessibility/access/
• Air Care Alliance is made up of qualified, non-profit charitable organizations that arrange free flights for individuals who need to travel long distance for medical appointments such as specialized surgery, pediatric specialties, clinical trials, etc. https://aircarealliance.org/
• Bluepath is website that allows for people with disabilities to determine the accessibility of local businesses. Bluepath also connects local consumers and their families with local businesses who want to work together towards a more accessible world by providing tools needed to identify barriers to accessing a business and their goods and services https://blue-path.org/
• LINC Idaho Magic Valley Transportation makes transportation services available through a voucher-based program in the following counties: Blaine, Camas, Cassia, Gooding, Jerome, Lincoln, Minidoka, and Twin Falls counties. This program serves seniors over the age of 60 and individuals with disabilities. The program provides affordable and accessible on-demand transportation. https://www.lincidaho.org/transportation
• Mercy Medical Angels is ready to help you and your caregiver with transportation to life changing, life-saving medical care across the U.S. Request Assistance for transportation on the ground with gas cards, bus or train tickets or in the air with flights flown by volunteer pilots or the commercial airlines https://www.mercymedical.org/
• MTM Health, Idaho Non-Emergency Medical Transportation (NEMT) arranges rides for eligible Medicaid members throughout the state of Idaho https://www.mtm-inc.net/idaho/
• Metro Community Services is a non-profit organization that offers assistance to senior citizens, people with disabilities, and the economically-disadvantaged in Canyon County and surrounding areas. They are focused on promoting independence. Services include community services like transportation, and housing services https://www.metrocommunityservices.net/

• Americans with Disabilities Act (ADA) is a law that protects people with disabilities in many areas of public life. This website provides information, guidance, and resource materials that pertain to ADA among state and local governments as well as businesses https://www.ada.gov/resources/?filters=
• DisAbility Rights Idaho provides access to legal protection and advocacy for individuals with disabilities https://www.disabilityrightsidaho.org/
• Fyidaho is a program that is committed to improving, preserving, and restoring the mental health of youth and families (formerly known as Idaho Federation of Families for Children’s Mental Health) https://www.fyidaho.org/
• Idaho CDHD operates grant programs that provide training, services, and assistance for people with disabilities, families, professionals, and local communities across the state of Idaho https://idahocdhd.org/AboutUs/aboutCDHD
• Idaho Council on Developmental Disabilities (ICDD) leads the way in our state in advancing issues that improve the lives of people with intellectual and developmental disabilities (I/DD) and their families by actively listening to all stakeholders, identifying and exploring emerging trends, and proactively reaching out to collaborate with a variety of leaders and organizations to develop effective solutions. The Council advocates with and on behalf of Idahoans with developmental disabilities by listening to their concerns and working to help them improve their lives by building service systems and natural supports that enable them to live lives of independence, responsibility, meaning, and contribution https://icdd.idaho.gov/
• Idaho Legal Aid Services, Inc. is a nonprofit statewide organization dedicated to providing equal access to justice for low-income people through quality advocacy and education https://idaholegalaid.org/
• Idaho Parents Unlimited (IPUL) offers training, webinars, and resources for parents of children with disabilities and special needs. They provide individual assistance to families, advocate for Idaho families impacted by disability, listen, and provide support https://ipulidaho.org/
• Idaho Partners in Policymaking is an innovative leadership development program for adults with developmental disabilities and parents of children with disabilities. Partners receive information, training, resources, and skill-building so they may have the best possible life experiences for themselves and their children. The program was developed specifically to teach people with disabilities and families of young children with disabilities to work on long-term change, become active partners with policymakers, and understand possibilities and how to create them https://icdd.idaho.gov/partners-in-policymaking/#:~:text=What%2520Is%2520Idaho%2520Partners%2520in,parents%2520of%2520children%2520with%2520disabilities
• Power Independent Living is a campaign that is devoted to ending Idaho’s direct care worker crisis. They advocate for more support of direct care as a sustainable career choice. They also have resources to find direct care, caregiver training, and family caregiver support
• Wrightslaw Idaho Yellow Pages For Kids helps caregivers find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocated, and attorneys for children with disabilities https://www.yellowpagesforkids.com/help/id.htm#google_vignette

• I’ll Push You by Justin Skeesuck and Patrick Gray
  Amazon | Barnes and Noble
• Out of My Mind (Book 1 of 3 in The Out of My Mind Series) by Sharon M. Draper
  Amazon | Barnes and Noble
• Out of My Heart (Book 2 of 3 in The Out of My Mind Series) by Sharon M. Draper
  Amazon | Barnes and Noble
• Out of My Dreams (Book 3 of 3 in The Out of My Mind Series) by Sharon M. Draper
  Amazon | Barnes and Noble
• The Alphabet Soup Book: A Tool for Understanding Disability-Related Acronyms
  https://ouhsc.edu/thecenter/Publications/Publication-Details/Alphabet-Soup-Book

For Siblings:

• View from our Shoes: Growing Up With a Brother or Sister With Special Needs by Donald Joseph Meyer
  Amazon
• Billy’s Sister: Life when your sibling has a disability by Jessica Leving
  Amazon
• Evely’s Sister by Luna Diaz
  Amazon
• Reading Frame is a website that consolidates books about living with various genetic conditions https://www.readingframe.org/

• Emergency Preparedness for People with Disabilities https://www.lincidaho.org/emergency-preparedness
• Glossary of Diagnoses and Terminology https://carryingtoterm.org/diagnosis-glossary/

• Wildflower Intuitive Center offers end-of-life doula support for children and families. Wildflower understands that families preparing for the loss of a child are going through a truly unique kind of suffering. Sometimes, that journey moves families into an early goodbye, and Wildflower provides a different kind of help. Wildlife offers holistic support at various levels including licensed clinical social work practitioner, college of medicine certified End of Life Doula, and medical Reiki master-level practitioner https://www.wildflowerintuitivecenter.com/
• Compassion & Choices is an organization that is dedicated to improving care, expanding options, and empowering everyone to chart their end-of-life journey. They provide tools, guides, and other resources for end-of-life planning
• Funeral Consumer Rights in Idaho summarizes your rights in making funeral arrangements, choices for disposition of remains, veteran and Social Security benefits, and the pros and cons of prepaying for a funeral https://idahofunerals.org/
• Green Burial Council helps individual learn more about green burial and how to find certified cemetery stewards, funeral professionals and funerary product sellers who share the commitment to create more sustainable after-death options for you, your community, and the planet https://www.greenburialcouncil.org/
• Let Your Love Grow is the world’s first patented, all-organic mixture designed to offset the natural toxicity of cremated ash and invite new life to flourish https://letyourlovegrow.com/
• National Home Funeral Alliance (NHFA) nonprofit, all-volunteer organization that is the leading body of home after-death care support and education in the United States, with support abroad as well. NHFA publishes a home funeral guidebook that educates the public on how to care for their own dead at home. It can be downloaded on a pay-what-you-can basis, or readers can purchase a digital or hard copy. The guidebook includes checklists for how to plan a home funeral, diagrams of how to perform at-home body care such as washing and shrouding, resources for creating customized rituals, and more https://www.homefuneralalliance.org/
• Recompose is a green funeral home that specializes in human composting to transform your loved one’s body into soil. The soil can be used to nourish gardens and plants, or to scatter across favorite places https://recompose.life/
• Return Home is a company that exists to ensure families have access to gentle, inclusive, and transparent death care the continues the cycle of life. Their terramation (human composting) process gently transforms human remains into life-giving soil using only alfalfa, straw, and sawdust. They offer immediate need terramation service at no cost for children under the age of 18 https://returnhome.com/
• St. Luke’s Pediatric Palliative and Supportive offers an added layer of support for you and your child when you’re dealing with a serious or life-limiting illness. We strive to build relationships that facilitate communication and coordination of care to help you and your whole family navigate medical care while managing the demands of daily life https://stlukesonline.org/en/specialties-services/pediatric-palliative-and-supportive-care/